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Noah (left) and Hunter Small, of Winnetka, were recently diagnosed with Duchenne muscular dystrophy, a disease which will eventually rob them of the ability to walk and use their muscles normally. Their parents are participating in Chicago’s Shamrock Shuffle this March to fundraise for medical research. PHOTO SUBMITTED
With Duchenne muscular dystrophy, muscle weakness first affects the hips, pelvic area, thighs and shoulders. Later, the skeletal muscles in the arms, legs and trunk are affected, and heart and respiratory muscles suffer.
Jacqueline Glosniak, Editor
2:41 pm CST January 22, 2018
Running, jumping, climbing on park equipment — these are all activities expected out of children, especially boys, during the formative years. Often, these are behaviors which, if done too frequently, can be a source of frustration for parents. But for Winnetka resident Alison Joseph, these normal youth habits will be cherished for as long as they can, since in a few short years, two of her children may no longer physically be able to do any of them.